Biotinidase Deficiency List Serve
An email list serve, a/k/a email list, has been established for persons who would like to communicate with others regarding biotinidase deficiency. Here are the answers to some commonly asked questions about the BTD list serve.
Who is the BTD List Serve for?
This list serve is for families of a children with BTD, individuals with BTD, professionals involved in BTD detection & treatment and any persons, whether public or professional, that is interest in BTD.
What is the purpose of the BTD List Serve?
The purpose of this list is to provide a forum for communication for BTD. Because BTD is a rare disorder, the people affected by BTD are scattered all over the world and it is sometimes difficult for them to connect. The intentions of this list service is to bring these people closer together.
The purpose of the list is to share experiences in detecting, managing and living with BTD. This list is a forum for BTD families and affected individuals to share information, advice and experiences about BTD.
This list is not intended to be a source of medical information or advice and should not be used as a substitute for the medical care and advice of your doctor.
What is a List Serve?
A list serve is an emailing list; a unique service that handles numerous mailings to specific individuals. When members of the list send a message to the list serve, it goes to all other members in the group.
If a member wants to reply to a message and it to go only to the person that posted the message, they can do this by selecting the "reply" only button in their email management program. If a member would like for a reply to go to the entire list serve, they can do this by selecting the "Reply to All" button.
How To Become a Member of the BTD List Serve
If you would like to become a member of the BTD List Serve, the first step is to sign up. There is no cost, and there are no "strings attached." All you need to do is subscribe. You will then receive email messages through the list serve and you are free to respond to them with your comments or ideas, or just sit back and learn from the exchange. Anyone in the world, who has an Internet user ID is eligible to become a member. Simply enter your email address here:
In an effort to facilitate communication, members are asked to observe the rules and procedures listed below. Any list serve member who does not abide by one or more rules is subject to being removed permanently from the list serve:
The BTD List Serve is open to anyone who chooses to join.
All members must abide by the following rules of etiquette:
See full Yahoo! list serve regulations here.
|The information contained in this website should not be used as a substitute for the medical care and advice of your doctor. There may be variations in treatment that your doctor may recommend based on individual facts and circumstances.
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